GCRF is grateful for the Turano Family and their courageous fight again GIST Cancer. We thank them for their generous support and making a difference in the lives of GIST patients everywhere. We ask everyone to keep Angelo, GIST patients and families in your thoughts and prayers.
For the Turano Family, the GIST Cancer Research Walk For a Cure was personal. Angelo Turano was diagnosed with GIST cancer in 2008. Between that time and 2015, he endured three surgeries to remove GIST tumors. In August of this year, Angelo was diagnosed again with a reoccurrence of GIST. After learning of his most recent diagnosis, the Turano family was devastated. But after a few weeks, they made a decision to stay optimistic and concentrate on something positive. They began by doing some research on GIST Cancer and in doing so, found the GIST Cancer Walk For A Cure in New York.
The doctor treating Angelo is Dr. Ron DeMatteo and he often speaks of the GCRF Walk. Angelo, his wife, Karen and their two children immediately made the decision to participate in the 2016 Walk for a Cure. Not only would they walk but also, they made a concerted effort to raise money for the walk in only three weeks time.
Karen took charge and decided to use the most efficient way to quickly communicate to family and friends. She sent out text messages inviting them to participate in the walk as well. Two weeks prior to the walk, Karen and her sisters brainstormed on how to raise money in such a short time. “We thought about having a fundraiser dinner but our concern was the short notice. First, can we pull it off? And second, would people come? My sister, Chrissy, said that we should just invite everyone we know and see who can make it,” Karen said. It was a great idea. They invited family members and close friends for a dinner at the Turano house the following weekend and asked for donations for the GIST Cancer Research Fund in honor of Angelo. They were determined to raise funds for the walk.
Everyone was assigned a task, whether it was shopping, making centerpieces, cooking, setting up the tables and chairs, decorating, donating prizes, cleaning up, etc. All of the Turano family and friends came together and contributed to the success of what turned out to be an amazing event. “Never would I have imagined the turnout we had. We ended up with over 100 people at our home honoring Angelo and when it was over, we raised over $7,500.00,” commented Karen.
The Turano Family: (left to right) Karen, Angelo, Angelica and Angelo Jr.
Friends and family gather to celebrate life and Angelo Turano.
Team Turano at the 2016 GIST Cancer Research Walk For A Cure.
Every member of Team Turano who participated in the Walk and even some who couldn’t make it, reached out to all of their extended family, friends, business partners and coworkers to raise additional donations. In total, over $13,000.00 was raised. This was truly an amazing effort by one family to make a difference in the fight to find a cure for GIST Cancer. Of course, the Turano Family has decided to make this an annual event to help raise the much-needed funds for GIST Cancer research.
On behalf of GCRF and its Board of Directors, we wish to thank all of you who attended and supported the GIST Walk For A Cure in New York. Here are some highlights of this year’s Walk For A Cure. If you didn’t attend, please remember to be generous and donate to fight GIST Cancer.
Dr. Ronald DeMatteo, Memorial Sloan Kettering and GCRF’s, Tania Stuntman
NBA great, Walt Frazier and Ephraim S. Casper, MD, Memorial Sloan Kettering & GCRF Chief Medical Consultant
The 2016 GCRF Walk For A Cure’s starting line!
NBA great, Walt Frazier and the amazing GIST Cancer Doctors (left to right): Ephraim S. Casper, MD, Memorial Sloan Kettering & GCRF Chief Medical Consultant; Dr. Jonathan A. Fletcher, MD, Brigham and Women’s Hospital; Margaret von Mehren, MD, (back) Martin Belinkey, PhD, Lori Rink, PhD, Fox Chase Cancer Center; (back) Dr. Michael Heinrich and researchers, Oregon Health & Science University; Dr. Anette Duensing, MD, University of Pittsburgh Cancer Institute; Dr. Ronald DeMatteo, Memorial Sloan Kettering
NBA Hall of Famer, Walt Frazier and our GCRF supporters
Anette Duensing, MD, University of Pittsburgh Cancer Institute, OHSU Researchers, Amber Bannon & Julie Klug and Stefan Duensing, MD Adjunct Associate Professor, University of Pittsburgh.
In memory of all those who lost their lives to GIST Cancer
Oregon Health and Science University’s Knight Cancer Institute’s Dr. Michael Heinrich and researchers, Amber Bannon and Julie Klug.
Fox Chase Cancer Center’s Assistant Professor and Margaret von Mehren, MD speaks with
Martin Belinkey, PhD and Ephraim S. Casper, MD, Memorial Sloan Kettering & GCRF Chief Medical Consultant look on.
NBA Hall of Famer, Walt Frazier and Dr. Jonathan A. Fletcher, MD, Brigham and Women’s Hospital
Tania Stutman the GIST Cancer Doctors and Researchers
Pam Fedowich, GCRF Board Member waiting to register walkers.
Jonathan A. Fletcher, MD, Brigham and Women’s Hospital
An update and message of thanks for the GIST Cancer Research Fund from Jonathan A. Fletcher, MD, and his team at Brigham and Women’s Hospital: (in order of appearance) Nacef Bahri, Alexandra Lauria, Meijun Zhu, MD, Bin Li, MD, PhD, Stacy Yanofsky, Armelle Dufresne, MD, PhD, Wenbin Ou, PhD, and Anastasios (Tasos) Kyriazoglou, MD, PhD.
This video highlights advances in research and treatment for Gastrointestinal Stromal Tumors made at Fox Chase Cancer Center in Philadelphia. Fox Chase is grateful to the GIST Cancer Research Fund and its founders, Tania and Robert Stutman, for their generous support. In the video, Martin Belinkey, PhD, Staff Scientist, Lori Rink, PhD, Assistant Professor and Margaret von Mehren, MD, Dept. of Hematology/Oncology share some of the advances made over the past year, as well as what they will pursue in the coming year with this financial support.
The research studies by Martin Belinkey and Lori Rink can be found in the links below:
The 2016 GCRF Conference and Luncheon at Oregon Health and Science University’s Knight Cancer Institute was held on May 10, 2016. The labs of Dr. Michael Heinrich, Dr. Christopher Corliss and Dr. Brian Druker are relentless in their dedication to advancing treatment options for patients with gastrointestinal stromal tumors (GIST) and other cancers. The teams are actively working on a variety of projects that are yielding promising results: The search for a master key
Strategies to decrease KIT production
Identifying new types of GIST
Establishing model systems for SDH-deficient GIST to test new strategies
Dr. Michael Heinrich gave a presentation which include a review of the the projects he and his team of researchers are currently working on at OHSU.
We would like to extend our sincere gratitude to everyone who participated in the 2016 Annual GCRF Conference and Luncheon. It was wonderful to see so many of you and we hope you found a sense of community, patient support and helpful information at this event. Additionally, we want to thank the GCRF for their incredibly generous donation. With your amazing fundraising efforts, we are able to continue to work hard to find a cure for this devastating disease.
Please Attend the: GIST Cancer Research Fund Presentation, Wednesday, March 30, 2016 at 3pm at Rockefeller Research Laboratories, Room 104. Speakers: Cristina R. Antonescu, MD, “Update in Pediatric and Wild Type GIST Research” Ping Chi, MD, PhD, “Clinical Experience of Targeting ETV1 in Advanced GIST” Ronald P. DeMatteo, MD, FACS, “Immune Therapy for GIST” Please RSVP by Friday, March 25 to Audrey Williams Email: firstname.lastname@example.org • Telephone: 646-227-3531
DONATE TODAY For GIST Cancer Bracelets!For a donation of $15 or more, we will send you Two Find The Cure GIST Cancer Bracelets.
Wear your bracelets to create awareness! Donate today to support research to help eradicate GIST. Sizes: MED and LRG
GIST Find the Cure Magnetic Ribbon is now Available. With a donation of $12.00 (includes postage) we will send you the GIST Find the Cure Ribbon. You may donate online through Paypal using the 'Add to Cart' button below.
Join the fight against GIST Cancer. 100% cotton T-shirts available for a $20.00 donation (includes postage).Tell the world how you feel about GIST. Sizes: MED and LRG Call GCRF at 845-634-6060 if interested in other sizes or extra quantities. You may donate online through Paypal using the 'Add to Cart' button below.
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