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GIST CANCER
RESEARCH FUND
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Links to Sites of Interest and GISTers Sites

Novartis Nilotinib
Compassionate Use (CU) Program

Patients who are not able to participate in ongoing nilotinib clinical trials may be able to receive nilotinib on a compassionate use basis.

Requests for compassionate use will only be considered when the request is sent to Novartis by the treating physician through a secure, business email.

Patients will be evaluated for eligibility based on pre-defined inclusion/exclusion criteria.

Requests should be routed to the local, country Novartis medical representative for submission to the following email address:

Nilotinib.CompassionateUse@Novartis.com

Life Raft Group
A GIST Support Group

GIST Support International
A GIST Support Group

GIST Support UK
A GIST Support Group with meetings

Surgery to remove stomach cancer
Informational

Tumor growth
"Bizibill.com website"- A fully interactive spread sheet - demonstrates tumor growth.

About GIST
"People Living With Cancer" website

GIST Talk - A GIST forum
"NewCMLDrug.com" website

http://www.joeshouse.org/ 
"The mission of Joe's House is to be a housing resource for cancer patients and their families who must travel away from home for medical treatment. Our site lists hundreds of cancer treatment centers and nearby lodging facilities."

Novartis Patient Registry
1-800-799-8766

Patiant Advocate foundation ( PAF )866-512-3861

www.copays.org
www.patientadvocate.org

Travel Assistance Angel Flight
http://www.angelflight.com1-800-549-9980

LifeLine Pilots
http://www.lifelinepilots.or/1-800-822-7972

Mercy Medical Airlift
National Patient Travel Center
4620 Haygood Road, Suite 1
Virginia Beach, Virginia 23455
If any question about this service call Mr. Steve Patterson,Executive Vice President, Medical Airlift757-318-9174
www.mercymedical.org

NCCN Task Force Report: Management of
Patients with Gastrointestinal Stromal
Tumor (GIST)Update of the NCCN
Clinical Practice Guidelines

GIST clinical trials at clinicaltrials.gov

Search for a GIST clinical trial at cancer.gov

Persistence Paves Way for GIST Recovery

Book on GIST

ASCO: Imatinib (Gleevec) After GIST Surgery Achieves Big Survival Advantage

Nilotinib (AMN107)

AMN107 (Nilotinib) BCR-ABL TYROSINE KINASE INHIBITOR

National Center for Biotechnology Information
U.S. National Library of Medicine
8600 Rockville Pike, Bethesda, MD 20894

NORD - National Organization for Rare Disorders.

National Comprehensive Cancer Network

American Cancer Society

ASCO American Society of Clinical Oncology

EmergingMed.com is a free and confidential cancer clinical trial matching and referral service.

What is Radiofrequency Ablation of Liver Tumors?

Anti-Dumping Post-Gastrectomy Diet

www.gleevec.com

www.emergingmed.com

www.themaxfoundation.org

www.globalgist.org

www.medids.com
Medical ID Alert Wallet Card

www.medicare.org
Centers for Medicare& Medicaide Services (CMS)

www.medicarxmatters.org

www.medicareinteractive.org

www.maprx.infomedicare
access for pt's Rx-MAPRx

GuideStar - connection people with non-profit information

Multiple Gastrointestinal Stromal Tumors in Neurofibromatosis Type 1 Threaded with Laparoscopic Surgery


World Stats Including Cancer Deaths

Patient Acvocate

Patient Services Incorporated

Mollecular Biology, Pathobiology, and Genetics Pediatric KITWild-Type and Platelet-Derived Growth Factor Receptor...link to full article.

Dr. Kondo also discovered biomarker candidates for prediction of early metastasis post surgery in gastrointestinal stromal tumor (GIST)...link to full article

Medical Advisory Board Members (continued)


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Information | Peter Thomas | Lee Kavaloski | Michele Ann Scheiperpeter | Gerald Snodgrass
Andrew Godwin Ph. D. | Anette Duensing M. D. | Chandrajit P. Raut M.D. | Charles D. Blanke M.D. | Christopher L. Corless M.D. Ph.D | Cristina Antonescu M.D. | David R. D'Adamo M.D. Ph.D. | Ephraim S. Casper M.D. (Chief Medical Advisor) | George D. Demetri M.D | Jonathan A. Fletcher M.D. | Margaret VonMehren M.D. | Michael C. Heinrich M.D. | Murray R. Brennan FACS | Robert G. Maki M.D. Ph.D | Ronald De Matteo M.D.
Dr. Sam Singer | James C. Watson MD


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