Links
Project FLAG – Families Learning About GIST (1-800-828-6622)
Understanding GIST – educational material provided by Pfizer.
The GIST Alliance – Information for healthcare Professionals
American Society of Clinical Oncology (ASCO) Virtual Meeting features more than 25,000 oral presentations, abstracts, and posters from meetings dating back to 1999 – the most comprehensive collection of oncology-related multimedia lectures available on the Web
MESOTHELIOMA, for those diagnosed with mesothelioma, an asbestos-related cancer of the lining of the lung (pleura) or the lining of the abdominal cavity (peritoneum).
Project FLAG is a research study, sponsored by the National Institutes of Health, focused on learning more about GISTs (gastrointestinal stromal tumors) that may be hereditary.
Life Raft Group
A GIST Support Group
First Resource is a free insurance support program. It’s sponsored by Pfizer Oncology. The program helps with the insurance process. It can make it simpler for you. It can also help your doctor through the process.
GIST Support International
A GIST Support Group
GIST Support UK
A GIST Support Group with meetings
Surgery to remove stomach cancer
Informational
Tumor growth
“Bizibill.com website”- A fully interactive spread sheet – demonstrates tumor growth.
About GIST
“People Living With Cancer” website
GIST Talk – A GIST forum
“NewCMLDrug.com” website
http://www.joeshouse.org/
“The mission of Joe’s House is to be a housing resource for cancer patients and their families who must travel away from home for medical treatment. Our site lists hundreds of cancer treatment centers and nearby lodging facilities.”
Novartis Patient Registry
1-800-799-8766
Patient Advocate Foundation
866-512-3861
www.copays.org
Travel Assistance Angel Flight
1-800-549-9980
LifeLine Pilots
1-800-822-7972
Mercy Medical Airlift
National Patient Travel Center
4620 Haygood Road, Suite 1
Virginia Beach, Virginia 23455
If any question about this service call Mr. Steve Patterson,Executive Vice President, Medical Airlift 757-318-9174
NCCN Task Force Report: Management of
Patients with Gastrointestinal Stromal
Tumor (GIST)Update of the NCCN
Clinical Practice Guidelines
GIST clinical trials at clinicaltrials.gov
Search for a GIST clinical trial at cancer.gov
Persistence Paves Way for GIST Recovery
Book on GIST
ASCO: Imatinib (Gleevec) After GIST Surgery Achieves Big Survival Advantage
Treatment of gastrointestinal stromal tumor: focus on imatinib mesylate
Nilotinib (AMN107)
AMN107 (Nilotinib) BCR-ABL TYROSINE KINASE INHIBITOR
National Center for Biotechnology Information
U.S. National Library of Medicine
8600 Rockville Pike, Bethesda, MD 20894
NORD – National Organization for Rare Disorders.
National Comprehensive Cancer Network
American Cancer Society
ASCO American Society of Clinical Oncology
EmergingMed.com is a free and confidential cancer clinical trial matching and referral service.
What is Radiofrequency Ablation of Liver Tumors?
Anti-Dumping Post-Gastrectomy Diet
www.gleevec.com
www.emergingmed.com
www.themaxfoundation.org
www.globalgist.org
www.medids.com
Medical ID Alert Wallet Card
www.medicare.org
Centers for Medicare& Medicaide Services (CMS)
www.medicarxmatters.org
www.medicareinteractive.org
www.maprx.infomedicare
access for pt’s Rx-MAPRx
GuideStar – connection people with non-profit information.
Multiple Gastrointestinal Stromal Tumors in Neurofibromatosis Type 1 Threaded with Laparoscopic Surgery
World Stats Including Cancer Deaths
Patient Acvocate
Patient Services Incorporated
Mollecular Biology, Pathobiology, and Genetics Pediatric KITWild-Type and Platelet-Derived Growth Factor Receptor…link to full article.
Dr. Kondo also discovered biomarker candidates for prediction of early metastasis post surgery in gastrointestinal stromal tumor (GIST)…link to full article
Corporate Angel Network We arrange free air transportation for cancer patients traveling to treatment using the empty seats on corporate jets.
National Patient Travel Center The NPTC exists to facilitate patient access to appropriate charitable medical air transportation resources in the United States.
Medicare Website
Centers for Medicare & Medicaid Services
US Disability Benefits
Travel Assistance
A phase I study of vorinostat in combination with bortezomib in refractory solid tumors.
Vorinostat and Bortezomib in Treating Patients With Metastatic or Unresectable Solid Tumors
Radiologic findings in malignant gastrointestinal stromal tumors
A Study Evaluating GDC-0980 Administered Once Weekly in Patients With Refractory Solid Tumors or Non-Hodgkin’s Lymphoma
Cell Cycle/Apoptosis Molecule Expression Correlates with Imatinib Response in Patients with Advanced Gastrointestinal Stromal Tumors
Gastrointestinal Stromal Tumor (GIST) Comes of Age: Current Management Using Molecular Pathology, Surgery, and Targeted Therapy
Gastrointestinal Stromal Tumors
Pazopanib in Treating Patients With Metastatic Soft Tissue Sarcoma That Has Relapsed or Not Responded to Treatment
A Randomized Double Blind Phase III Trial of Pazopanib Versus Placebo in Patients With Soft Tissue Sarcoma
Whose Disease Has Progressed During or Following Prior Therapy (PALETTE)
Phase III, Open-Label Study of
The Pediatric and wildtype GIST Clinic at the NIH
Gastrointestinal Stromal Tumors: Ultrasonographic Spectrum of the Disease
A phase I study of vorinostat in combination with bortezomib in refractory solid tumors
Vorinostat and Bortezomib in Treating Patients With Metastatic or Unresectable Solid Tumors
Phase III, Open-label Study of Nilotinib Versus Imatinib in GIST Patients
NIH Pediatric and Wildtype GIST Clinic
Cell Cycle/Apoptosis Molecule Expression Correlates with Imatinib Response in Patients with Advanced Gastrointestinal Stromal Tumors
A Study Evaluating GDC-0980 Administered Once Weekly in Patients With Refractory Solid Tumors or Non-Hodgkin’s Lymphoma
Radiologic findings in malignant gastrointestinal stromal tumors