Project FLAG – for Families Learning About GIST

Gleevec Redefining treatment of patients with KIT+ GIST

Pfizer GIST Link – Latest info on Sutent

GISTCircle  My GIST Circle, Free support program for people who have been diagnosed with KIT Positive Gastrointestinal Stromal Tumor (also known as KIT+ GIST). From Novartis.

banner_nci_logo_1   Science Serving People website (www.cancer.gov) has been revised.  Worth a look.

FLAG  Project FLAG – Families Learning About GIST (1-800-828-6622)

Understanding GIST – educational material provided by Pfizer.

National Comprehensive Cancer Network – Website devoted to patients, caregivers and their familes

The GIST Alliance – Information for healthcare Professionals

American Society of Clinical Oncology (ASCO) Virtual Meeting features more than 25,000 oral presentations, abstracts, and posters from meetings dating back to 1999 – the most comprehensive collection of oncology-related multimedia lectures available on the Web

MESOTHELIOMA, for those diagnosed with mesothelioma, an asbestos-related cancer of the lining of the lung (pleura) or the lining of the abdominal cavity (peritoneum).

Mesothelioma Symptoms, Cancer information and facts

Project FLAG is a research study, sponsored by the National Institutes of Health, focused on learning more about GISTs (gastrointestinal stromal tumors) that may be hereditary.

Life Raft Group A GIST Support Group

First Resource is a free insurance support program. It's sponsored by Pfizer Oncology. The program helps with the insurance process. It can make it simpler for you. It can also help your doctor through the process.

GIST Support International A GIST Support Group

GIST Support UK A GIST Support Group with meetings

Surgery to remove stomach cancer Informational

Tumor growth "Bizibill.com website"- A fully interactive spread sheet – demonstrates tumor growth.

About GIST "People Living With Cancer" website

GIST Talk – A GIST forum "NewCMLDrug.com" website

http://www.joeshouse.org/ "The mission of Joe's House is to be a housing resource for cancer patients and their families who must travel away from home for medical treatment. Our site lists hundreds of cancer treatment centers and nearby lodging facilities."

Novartis Patient Registry 1-800-799-8766

Patient Advocate Foundation 866-512-3861

www.copays.org

Travel Assistance Angel Flight 1-800-549-9980

LifeLine Pilots 1-800-822-7972

Mercy Medical Airlift National Patient Travel Center 4620 Haygood Road, Suite 1 Virginia Beach, Virginia 23455 If any question about this service call Mr. Steve Patterson,Executive Vice President, Medical Airlift 757-318-9174

NCCN Task Force Report: Management of Patients with Gastrointestinal Stromal Tumor (GIST)Update of the NCCN Clinical Practice Guidelines

GIST clinical trials at clinicaltrials.gov

Search for a GIST clinical trial at cancer.gov

Persistence Paves Way for GIST Recovery

Book on GIST

ASCO: Imatinib (Gleevec) After GIST Surgery Achieves Big Survival Advantage

Treatment of gastrointestinal stromal tumor: focus on imatinib mesylate

Nilotinib (AMN107)

AMN107 (Nilotinib) BCR-ABL TYROSINE KINASE INHIBITOR

National Center for Biotechnology Information U.S. National Library of Medicine 8600 Rockville Pike, Bethesda, MD 20894

NORD – National Organization for Rare Disorders.

National Comprehensive Cancer Network

American Cancer Society

ASCO American Society of Clinical Oncology

EmergingMed.com is a free and confidential cancer clinical trial matching and referral service.

What is Radiofrequency Ablation of Liver Tumors?

Anti-Dumping Post-Gastrectomy Diet

www.gleevec.com

www.emergingmed.com

www.themaxfoundation.org

www.globalgist.org

www.medids.com Medical ID Alert Wallet Card

www.medicare.org Centers for Medicare& Medicaide Services (CMS)

www.medicarxmatters.org

www.medicareinteractive.org

www.maprx.infomedicare access for pt's Rx-MAPRx

GuideStar – connection people with non-profit information.

Multiple Gastrointestinal Stromal Tumors in Neurofibromatosis Type 1 Threaded with Laparoscopic Surgery

World Stats Including Cancer Deaths

Patient Acvocate

Patient Services Incorporated

Mollecular Biology, Pathobiology, and Genetics Pediatric KITWild-Type and Platelet-Derived Growth Factor Receptor…link to full article.

Dr. Kondo also discovered biomarker candidates for prediction of early metastasis post surgery in gastrointestinal stromal tumor (GIST)…link to full article

Corporate Angel Network We arrange free air transportation for cancer patients traveling to treatment using the empty seats on corporate jets.

National Patient Travel Center The NPTC exists to facilitate patient access to appropriate charitable medical air transportation resources in the United States.

Medicare Website

Centers for Medicare & Medicaid Services

US Disability Benefits

Travel Assistance

A phase I study of vorinostat in combination with bortezomib in refractory solid tumors.

Vorinostat and Bortezomib in Treating Patients With Metastatic or Unresectable Solid Tumors

Radiologic findings in malignant gastrointestinal stromal tumors

A Study Evaluating GDC-0980 Administered Once Weekly in Patients With Refractory Solid Tumors or Non-Hodgkin's Lymphoma

Cell Cycle/Apoptosis Molecule Expression Correlates with Imatinib Response in Patients with Advanced Gastrointestinal Stromal Tumors

Gastrointestinal Stromal Tumor (GIST) Comes of Age: Current Management Using Molecular Pathology, Surgery, and Targeted Therapy

Gastrointestinal Stromal Tumors

Pazopanib in Treating Patients With Metastatic Soft Tissue Sarcoma That Has Relapsed or Not Responded to Treatment

A Randomized Double Blind Phase III Trial of Pazopanib Versus Placebo in Patients With Soft Tissue Sarcoma

Whose Disease Has Progressed During or Following Prior Therapy (PALETTE)

Phase III, Open-Label Study of

The Pediatric and wildtype GIST Clinic at the NIH

Gastrointestinal Stromal Tumors: Ultrasonographic Spectrum of the Disease

A phase I study of vorinostat in combination with bortezomib in refractory solid tumors

Vorinostat and Bortezomib in Treating Patients With Metastatic or Unresectable Solid Tumors

Phase III, Open-label Study of Nilotinib Versus Imatinib in GIST Patients

NIH Pediatric and Wildtype GIST Clinic

Cell Cycle/Apoptosis Molecule Expression Correlates with Imatinib Response in Patients with Advanced Gastrointestinal Stromal Tumors

A Study Evaluating GDC-0980 Administered Once Weekly in Patients With Refractory Solid Tumors or Non-Hodgkin's Lymphoma

Radiologic findings in malignant gastrointestinal stromal tumors